Framed Print "You Are The Only You"
Framed Print "You Are The Only You"
This is Owen’s handwriting. It was done the year of our diagnosis and the year he could trace letters well and write his first name on his own. I’m so grateful that he is still able to do this! Some of the children with this disease have never been able to or never will be able to write. These little markings of his will be something that I’ll always cherish more than I can explain. I had him trace this to remind us that there is only ONE you. That is a pretty powerful superpower, isn’t it?
We hope that you are able to continue to find the strength in your journey and know when you put your mind to it, you will definitely make a difference in this world.
Thank you for being here to support our boy living with Sanfilippo Syndrome and allowing him to share his light to make a difference.
In our home, we’ve learned that life is short. Perspective is absolutely everything and that the truest of strength you have will come when you fail, fall and make mistakes. Taking ‘one day at a time’ has been our motto and encouraging others to find their purpose through the pain, no matter what it is you’ve been through or are currently going through. You are not defined by your past, you are not defined by your mistakes, you are not defined by your failures, not even through your words that you may have said or what others will think. What defines you as a person is something you may not have even found yet. And that’s okay. But once you find your purpose in the journey, you’ll have it all. You’ll become who you were created on this earth to be and you’ll be able to help so many others in theirs. Thank you so much for being here with us in our story. Welcome into our home, ‘the house on College Avenue.’